For the past few years I’ve stepped away from this blog. It’s not like I haven’t had time or anything. I’ve been caught up with stuff. I’ve been caught up with Aiden who from birth was a handful. I then went through a messy breakup which after almost 3 years has finally quieted down. Then now there is a second special needs son (Cami). Followed by the addition of a beast and a baby girl. With all the pushing and fighting that I went through for Aiden then Cami, I should have blogged more. I could have inspired someone else to step up for their child(ren) BUT I didn’t. Thinking about it makes me sad. All this thinking came up because of what’s happening in the next few weeks.
On Thursday the letter with Aiden’s IEP meeting info for kindergarten came in the mail. (For the people who followed Aiden’s early days and anyone just dropping in, Aiden was severely speech delayed. And no he’s not on the spectrum (because that is usually the next question)) When he entered school in mid-December 2012, after 3 months of fighting, he was barely talking. He was nowhere close to potty training and had horrible temper tantrums. I actually had to buy ear plugs to get through them. Today Aiden is a normal 4 and a half year old. He plays hockey and loves to spell his name for you.
There are other fears that follow Aiden’s progress. I am afraid despite our awesome school system that he may fall through the cracks. I am worried that Aiden may fall behind again. I am so scared that Aiden will become one of the few statistics people hear. Everyone knows the numbers related to autism, but most people don’t know that once a child leaves the early intervention system they are likely to fall behind by 3rd grade, and once that child hits 4th grade there is little chance that they will catch up.
I’ve taken steps to hopefully prevent this from happening. I’ve become as hands on as I can. I have become so involved with my sons’ school that I even started a PTO, which is the first time since 90% of the teachers in the building can remember the school having one. I ask questions, and there’s a good chance that I am considered “that annoying” parent. But no matter how much I do, it comes down to if Aiden qualifies for services. I do not have that answer yet, but I do have my fingers crosses.